الاخ بكري ابوبكر واعضاء الموقع هل تقبلوا الفكره

07:38 PM May, 21 2022

سودانيز اون لاين
مصطفى نور-مصر
مكتبتى
رابط مختصر

السلام عليكم
اخي بكري ابوبكر
تحيه طيبه وانت كتبت بوست عن مستشفي الامل للسرطان فى السودان
وياريت كل عضو يحاول يشوف اي طريقه لدعم المشروع ممكن ماديا وممكن اعطاء اقتراحات من الاخوه الاعضاء
انا شخصييا اقترح عمل يوم مفتوح في محطات الاذاعه في السودان ويخلوا الناس تتصل بي ارقام مباشره يكون فى عشرات الارقام وعشرات المتبرعين من الشباب لكي يتلقوا
الاتصالات وكذلك كل قنوات التلفزيون فى السودان يعملوا يوم كامل مفتوح يتصل الناس والشركات والافراد ورجال الاعمال وكل بما يسر له وفى كل انحاء العالم فى نفس اليوم يكون فى
اماكن معينه لتجمعات السودانين وكل زول يرسل او يحضر او يرسل التبرع البقدر عليه وممكن الناس فى جميع البلدان تفتتح حسابات بعد التنسيق مع اللجنه فى السودان للعمل الكبير ده
واسال الله ان يكون الناس جادين فى المشروع ده لانو الان عندنا اي مريض سرطان يتعالج خارج السودان على الاقل بدفع ليه 40 الف دولار وده مبلغ كبير
على كل الاخوه فى امريكا وكندا ودول المهجر ان يجدوا طريقه للتواصل مع الجمعيات العالميه لمحاربه السرطان فى العالم
اخي الغالي بكري هناك 345 منظه عالميه غى العالم لمحاربه السرطان وانا اجتهد جهد كبير في انو اقدر انزل ليكم كل 345 منظمه عالميه لمحاربه السرطان لماذا لانقوم نحن اعضاء سودانيز اون بقيادتك با التنسيق مع اللجنه فى السودان واختيار بعض الاعضاء او كل الاعضاء معنا وتقسيم العمل الي قروبات لمخاطبه كل المنظمات العالميه لمكافحه السرطان وانا اعرف ان معنا عدد كبير يجيد اللغه الانجليزيه وبعض اللغات الاخري لكي نحصل على الدعم من كل النواحي الاجهزه الاطباء المبالغ الماليه ولكن لازم يكون فى تنسيق واتصال مباشر مع الذين فى موقع القرار فى المشروع الانساني في السودان ان


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الاخوه الاعضاء لو قرانا عن اول جمعيه فى اللسته بتاعت ال 345 جمعيه لمكافحه السرطان في العالم ممكن نعرف كل شي عن الجمعيه وبتقدم شنو للمرضي العندهم سرطان
كل ماعليك شيل اي اسم جمعيه اعمل ليه كوبي وابحث عنه فى قوقل
Acoustic Neuroma Association
تأسست جمعية الأورام العصبية الصوتية (ANA) في كارلايل ، بنسلفانيا عام 1981 من قبل فرجينيا فيكل إير. بعد إجراء عملية جراحية لإزالة ورم العصب السمعي في عام 1977 ، قررت أن مرضى ورم العصب السمعي في المستقبل يجب أن يكون لديهم مواد طبية سهلة القراءة حول حالتهم ، بالإضافة إلى الدعم والراحة من المرضى الآخرين. بمساعدة طبيبها ، اتصلت بثمانية مرضى آخرين وشكلت جمعية أورام العصب السمعي. خلال عشر سنوات ونصف التي قادت فيها الجيش الوطني الأفغاني ، اتصلت فرجينيا بآلاف مرضى ورم العصب السمعي وطوّرت خدمات الجمعية وأرقامها. كما كتبت مقالات حول منظور المريض في المجلات الطبية وتحدثت إلى المرضى والمجموعات الطبية في جميع أنحاء الولايات المتحدة وأوروبا. تقاعدت من منصب رئيس مجلس الإدارة في عام 1992 وتشغل الآن منصب الرئيس الفخري.
ANA هي منظمة غير ربحية 501 (c) (3) (معرف الضريبة 23-2170836) التي تخدم أكثر من 3000 عضو بما في ذلك مرضى ورم العصب الصوتي وأفراد الأسرة والأصدقاء والمتخصصين في الرعاية الصحية. يحكمها مجلس إدارة يتألف من المرضى وأفراد أسر المرضى. منذ تأسيسه ، تلقى آلاف الأفراد المتأثرين بورم العصب السمعي معلومات شاملة وغير تقنية حول القهم العصابي من خلال الأجسام المضادة للنواة. يتم توفير المعلومات لجميع مراحل رحلة المريض في النشرات الإخبارية الفصلية وكتيبات المعلومات والموقع الإلكتروني والندوات عبر الإنترنت ومجموعات الدعم وأحداث تثقيف المريض.
تقوم ANA على أساس المريض وتركز على المريض.